This is just a place for me to drop my thoughts, hopes and dreams.
Tuesday, March 23, 2010
if it doesn`t rain... get ready for this...
She's stable now and we can carry on a conversation with her, she's eating on her own. She still isn't able to get out of bed unassisted. She's presently in Paliative care at the hospital.
Tomorrow David and I are going to a place called Sakura House. Toyota donated it to VON. It's a million dollar home that houses 10 rooms for palliative care patients. They're goal is to give quality of life for there patients. I guess they're like little apartments, they even have decks for the patients to sit out on. Tv's, love seat & sofa, all the makings of your own apartment. Plus if mom wanted me to stay over night I could because there's a guest pull out bed. They have doctors and nurses on staff as well. She's already been accepted I believe so the head nurse at the hospital just needs me to confirm mom's wishes. So I told mom I would take pictures to show her.
Today I had to explain to my mom why she was were she was at (palliative care). Now we've explained this to her a few time over the course of the last 2 weeks, but this time I think she understands better.
I`ve had to have some pretty hard conversations with mom over the last week imparticular. The first one was if she wanted to be resesitated if this happens again, which she doesn`t... we also had to go over her will and where she wanted her things to go... and today I had to explain to her for the 4th-5th time what happened over the course of the last two weeks. Today was hard because I basically had to say to her that her lungs are dieing and her body is losing its drive to breath... I told her that if she was to come home things would end quickly because I can`t monitor her oxygen level and her blood sugars and all the other stuff the hospital or Sakura house can monitor. I talked to her on the phone tonight, she`s been feeling more pain in her back, because this cancer pulls the scar tissue from her previous operations... so they gave her a shot of morphine. So she`s feeling not so bad tonight... well physically anyways.
I haven`t been able to bring Maera up to see her because Maera caught bronchitis and strep throat in the middle of all this. So she`s on meds.
My back went out... I seen the chiropractor and he helped a lot... but then my mom went into the hospital the second time and I pinched the L or p5 nerve in my back... I was in so much pain all I could do was cry... my right leg went numb and I couldn`t control the muscles. I went to the hospital and they shot me up with two different drugs, then some morphine afterwards... and now I`m on celebrex until the chiropractor can fix me. I can move my leg now, but don`t have a lot of strength in it, and it`s still numb.
So much is up in the air right now with everything. I was thinking and I don`t know what to do with myself because mom`s not home... I have Maera... but now I`m confused about my own personal journey. I want another baby, and this should happen before I hit the big 35 in Nov.. although its not going to happen I would stil make it as close to that as possible. I also want to goto school and get my dog grooming lisence. But the school here in town isn`t holding any classes until next year. I have so many things going through my mind... everything feels so up in the air. I am missing my mom... and I am very sad that we are losing her... Maera won`t have a granny when mom passes as we lost David`s mom to cancer 3 yrs ago.
Anyways, that`s all I got in me tonight ladies.
Thankyou for all the kind comments and support. I love you all.
TTYS
XOXO
Tuesday, March 9, 2010
ICU & LIfe support
Today we were able to talk and she was co-herant ect. I was very afraid it was me giving her the wrong amount of drugs, but it wasn't... they just had prescribed to many for her. It really makes me mad too, because mom and I inquired 3 times as to why she was on so many pain killers and such to 2 different dr's, we wanted to take some of them away. But the dr's give you excuses like, oh I can't make any changes to drugs I didn't perscribe, or you have to take that in order to counteract the side effects from this other drugs... its rediculous! Now look at what happened!
Things haven't been looking so hot for her the last couple days. So I'm hoping she gets some better news tomorrow. I hope she can continue to breath on her own. I'm afraid to have her home in the condition she's in now. I'm thankful they're keeping her for 2-3 more days. They told her it was because she 'needed the IV for 2-3 more days'. She's happy with that ... so, so am I lol.
I'll be calling community care access to come in and do her drugs from now on, and to help out that way I won't feel so responsible for things tat aren't my fault the next time this happens. I don't really know when she's coming home, or if she can come home, but those are the plans.
Sorry, but that's all the energy I've got for tonight. Things have been very stressful so OI'm gunna goto bed early tonight. I'll update again as soon as I get a chance.
TTYS
XOXO
Monday, March 1, 2010
Annnd I'm back! LOL
Well, mom moved in, and we moved Doug and Micheline into their new place, everyone seems cozy now lol. Mom started her radiation treatments 3 weeks ago, so I've been very busy with driving her back and forth for that. She's doing very well with her treatments. We go every day of the week, it's a 3 hour round trip, with the acception of once a week where we stay to visit with the radiation Dr. Those days are a lot longer. They are fabulous at the London Cancer clinic though, and are really good with answering questions.
The radiation is shrinking the spot on her back, but that's the only place they can radiate, cause apparently ya can't do radiation on the lungs. So we had our appointment with the chemo specialist last week... found out that mums cancer is so rare that out of the 5000 new patients they get a year, 1-6 ppl have what she does... wow eh? So they're still learning about her type of cancer. But the promising thing is that they can hopefully stop the growth with Alieve and another Estrogen blocking medication. If that doesn't work then they can do Chemo, but it takes a long time for that to kick in and start possibly shrinking these things.
So I quite my job in Jan, mom asked if I could stay home if she increased what she was paying for 'rent'. I spoke with David and he agreed it would be best. We didn't like how Maera was reacting to not being around us as well. That's another story in itself. So I've been the perverberal house wife since then. It was really hard at the beginning to get into the groove of being home again. I worked 4 months, a 2 hour commute daily for both Maera and I, plus a 7 hour shift, then home to cook supper ect ect. Now I know a lot of women do this and they're okay with it, but for me I was tired all the time, and din't have the energy in the evening for maera like I wanted too. Plus helping mom and doing housework on top of all that was not so good. Things are still really busy with driving back and forth daily for mom's apointments, but its different because I don't have to drop Maera off at someones house every day and worry about her well being. I have time to do housework... well the last week has been difficult because apointment times have been in the middle of the day.
Now, how have I been doing with all this change? Well for the most part I'm okay with it. Money is an issue, although it always has been, and probably always will be, because we never seem to have enough of it lol. Not even when I was working. I kinda feel like I've put all my dreams and personal goals on the back shelf for other ppl, and It is bothering me more and more. I really want to get my grooming lisence, but can't because I have not time right now. Although that will be changing in a couple weeks, it's a 6 wk course and I have to be able to pay for a sitter, which runs $30/day. I don't think the gov't will pay for that and my course. I like being home and I like that I can be there for other ppl, but sometimes I feel like what Jenn wants, gets lost in the shuffle.
Now David says he does want another child, but we're back to the money issue and the time to get the procedures done that we need in order to get pregnant again, and we're on a time limit here. I'll be 35 in nov, and I know my chances go down a percentage even more... no preassure though lol. So I'm confused about a lot of things right now and am trying to keep my head straight on things.
I'm gunna take some time over the next few days and see if I can catch up with all of your blogs... It's difficult to get time along when mom's up and David's home and Maera's up... Everyone seems to require my 100% attention. Now Maera I of course don't mind lol, but I mean the adults should understand I need a few minutes alone, without someone looking over my shoulder and expecting something of me. So I'll get to each of you shortly. I hope you've all been well.
TTYL
XOXO